Ivy Finn was born with hypoplastic left heart syndrome, of HLHS, affecting the blood flow through her heart.
She was the first person ever to undergo an experimental surgery while in the womb and she is one step closer to coming home to Jacksonville.
MORE: PHOTOS: Local parents bring their miracle baby home after experimental surgery in the womb
She spent six months in a Texas hospital and had to undergo three open-heart surgeries.
Her future is uncertain, her parents Geoff and Rachel Finn say she will need another surgery in the next few years and eventually will need a heart transplant.
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“We don’t know how long she has, or what she’s going to do a week from now, a day from now,” Geoff Finn said.
Her parents said they are grateful for every moment they have with her.
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I’m so thankful I get to be her mom, and be my sons’ mom, and get to do this. It’s made me really appreciate my kids on a whole other level.” Rachel Finn said
The Finns want to raise awareness of HLLS.
Right now, the surgery remains experimental.
The family expects to come home to Jacksonville at the end of April.
A miracle baby, Ivy has had 3 open heart surgeries at only 6 months old. She had to undergo a first ever experimental surgery while in the womb. Hear from her parents and the incredible story of a chance at life @ActionNewsJax at 5:15 pic.twitter.com/WpBc66I745
— Bridgette Matter (@bridgetteANjax) April 2, 2019
Cox Media Group
